#EverydayEB P2P Tips: Managing EB in the Heat

Find your #EverydayEB Peer-to-Peer Tips on Managing EB in the Heat here!

Heat can intensify Epidermolysis Bullosa (EB) symptoms, making the hotter months particularly tough. We've pooled together our community's best tips, tools, and strategies to help everyone stay comfortable and cool this summer.

We encourage our readers to join the conversation and contribute your own suggestions in the comments section at the bottom of the post. Now, let’s dive in! 

CLICK HERE TO DOWNLOAD OR PRINT AN ABRIDGED LIST.

Clothing Options & Products

• Soft Sneakers (Contributor EB Type: DDEB)
• Uggs (Contributor EB Type: DDEB)
• Sun Hat with Full Brim (Contributor EB Type: RDEB)
• Portable Cooling Neck Fan (Contributor EB Type: RDEB)
• Soaked/Wet Neck Gaitor (Contributor EB Type: RDEB)
• Water Spray Bottles (Contributor EB Type: RDEB)
• Silopos Soft Socks (Contributor EB Type: Simplex)
• Light, Loose Clothing (Contributor EB Type: Simplex)
• Cotton (Contributor EB Type: Simplex)
• Thin Clothes (Contributor EB Type: Dystrophic)
• White Clothes (Contributor EB Type: Dystrophic)

Strategies

• "Be active in the morning before the heat really kicks in." (Contributor EB Type: Simplex)
• "Ice pack slippers with my feet up (but you can’t walk in them)." (Contributor EB Type: Simplex)
• "Don't do anything in the heat, just relax." (Contributor EB Type: Simplex)
• "Cool showers." (Contributor EB Type: RDEB)
• "Drink lots of water and wear thin clothing." (Contributor EB Type: RDEB)
• "I really try to keep my feet and hands as dry as possible." (Contributor EB Type: Simplex)
• "Use air-conditioning." (Contributor EB Type: Simplex)
• "If we are outside, we try to stay near water (pool, sprinkler, etc.) and in the shade. Shade can still be warm if there is no breeze, so make sure you find a breezy spot if it's there!" (Contributor EB Type: RDEB)
• "Keep feet as dry as possible by changing socks as needed. Also, cold soaks help." (Contributor EB Type: Simplex)
• "Spray from head to toe with deodorant. It helps with clothing and shoes from rubbing and causing blisters." (Contributor EB Type: RDEB)
• "I use heavy lotion on my feet and always wear socks. Never walk across hot asphalt driveways, trails, parking lots." (Contributor EB Type: Simplex)

Thank you to everyone who generously shared their insights! Your recommendations will help others facing similar challenges. 

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Disclaimer: Personal tips and suggestions are provided for informational purposes only and do not constitute endorsement or recommendation by debra of America. The tips shared are based solely on personal experiences and opinions of the contributor. Individuals should exercise their own judgment and discretion when implementing any advice or utilizing any products mentioned herein. Debra of America bears no responsibility for the outcomes or consequences that may arise from the application of these tips. Always consult with a qualified professional or seek official guidance for specific situations or concerns.