#EverydayEB P2P Tips: Winter Wellness

Find your #EverydayEB Peer-to-Peer Tips on Winter Wellness here! 

Colder temperatures can bring unique challenges for those with Epidermolysis Bullosa (EB). To help everyone stay comfortable and protected this season, we’ve gathered the community’s top winter wellness tips.

We’ve gathered suggestions across all age groups and EB types. We encourage our readers to join the conversation and contribute your own suggestions in the comments section at the bottom of the post. Now, let’s dive in! 

CLICK HERE TO DOWNLOAD OR PRINT AN ABRIDGED LIST.

Materials/Clothing

• Fuzzy socks
• Oversized hoodies and sweaters
• Lambswool (Contributor EB Type: Simplex)
• Fleece (Contributor EB Type: RDEB)
• 100% Cotton (Contributor EB Type: Simplex)
• Wool (Contributor EB Type: RDEB) 

Products

• “Ecco Track 25 M - Gore-Tex is a breathable material that keeps my feet dry in all weather. The leather finish makes the shoes a good fit on my feet after they have been worn in (which takes ~1 week of light walking).” (Contributor EB Type: Simplex)
• Heated Pads (Contributor EB Type: RDEB and Simplex) 
• Heated Blanket
• Aquaphor (Contributor EB Type: Simplex) 
• Under Armour Cold Gear (Contributor EB Type: Simplex) 

Strategies

• “Drink hot cocoa”  
• “Stay hydrated”
• "Get a pair of shoes that keeps your feet warm, but not too warm." (Contributor EB Type: Simplex)
• “High quality winter gloves will keep blisters away if you have to shovel snow manually.” (Contributor EB Type: Simplex)
• “Keep Moving”
• “Soft but warm clothes; extra soft blankets.” (Contributor EB Type: RDEB)
• “To help shield the cold and from drying out the skin, lubricating open areas, such as face, hands, etc.” (Contributor EB Type: Simplex)
• “Avoiding getting cold is 100 times easier than trying to relieve the cold.” (Contributor EB Type: RDEB)
• “Use soft gloves and hood instead of a hat.” (Contributor EB Type: RDEB)
• “I wear sandals all winter.” (Contributor EB Type: Simplex)
• “For our baby who is very young susceptible to the cold temperature, we just keep him indoors.” (Contributor EB Type: Simplex)
• “Hands and feet warmers are essential!” (Contributor EB Type: RDEB) 

Thank you to everyone who generously shared their insights! Your recommendations will help others facing similar challenges. 

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Disclaimer: Personal tips and suggestions are provided for informational purposes only and do not constitute endorsement or recommendation by debra of America. The tips shared are based solely on personal experiences and opinions of the contributor. Individuals should exercise their own judgment and discretion when implementing any advice or utilizing any products mentioned herein. Debra of America bears no responsibility for the outcomes or consequences that may arise from the application of these tips. Always consult with a qualified professional or seek official guidance for specific situations or concerns.