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Find your #EverydayEB Peer-to-Peer Tips on Managing EB in the Heat here!Heat can intensify Epidermolysis Bullosa (EB) symptoms, making the hotter months particularly tough. We've pooled together our community's best tips, tools, and strategies to help everyone stay comfortable and cool this summer.We encourage our readers to join the conversation and contribute your own suggestions in the comments

Find your #EverydayEB Peer-to-Peer Tips on Winter Wellness here! Colder temperatures can bring unique challenges for those with Epidermolysis Bullosa (EB). To help everyone stay comfortable and protected this season, we’ve gathered the community’s top winter wellness tips.We’ve gathered suggestions across all age groups and EB types. We encourage our readers to join the conversation and contribute

Find your #EverydayEB Peer-to-Peer Tips on Sports & Active Living here! We’ve gathered suggestions across all age groups and EB types. Each suggestion is presented as a quote from the contributor. We encourage our readers to join the conversation and contribute your own suggestions in the comments section at the bottom of the post. Now, let’s dive in! CLICK HERE TO DOWNLOAD OR PRINT ABRIDGED LIST.

Find your #EverydayEB Peer-to-Peer Tips on Organizing Bandages & Supplies here! We’ve gathered suggestions across all age groups and EB types. Each suggestion is presented as a quote, with the contributor's EB type noted. We encourage our readers to join the conversation and contribute your own suggestions in the comments section at the bottom of the post. Now, let’s dive in! CLICK HERE TO DOWNLOA

Our #EverydayEB P2P Tips series is a community-driven resource that aims to empower and support individuals living with EB in their daily lives. In this series, EB Community members share their practical tips, tools, and strategies to help others navigate life with EB. Our topic this month is EB-friendly Foods & Recipes! In this post, Tetiana Zamorska of Ukraine and mom to a young boy who lives wi

Find your #EverydayEB Peer-to-Peer Tips on Favorite Foods and Recipes here! We’ve gathered suggestions across all age groups and EB types. Categories include: TIPS & TOOLSBREAKFASTLUNCH/DINNERDESSERTSNACKSWe encourage our readers to join the conversation and contribute your own suggestions in the comments section at the bottom of the post. Now, let’s dive in! CLICK HERE TO DOWNLOAD OR PRINT THIS L

Find your #EverydayEB Peer-to-Peer Tips on Travel & Transportation here! We’ve gathered suggestions across all age groups and EB types. Categories include: TIPSGEAR RECOMMENDATIONSDESTINATION RECOMMENDATIONSWe encourage our readers to join the conversation and contribute your own suggestions in the comments section at the bottom of the post. Now, let’s dive in! CLICK HERE TO DOWNLOAD OR PRINT THIS

Our #EverydayEB P2P Tips series is a community-driven resource that aims to empower and support individuals living with EB in their daily lives. In this series, EB Community members share their practical tips, tools, and strategies to help others navigate life with EB. Our topic this month is EB-friendly Travel & Transportation! In this post, Sarah Morrill, a Pediatric Occupational Therapist who l

Find your #EverydayEB Peer-to-Peer Tips on EB-Friendly Clothing & Fashion here! We’ve gathered suggestions across all age groups and EB types. Each suggestion is presented as a quote, with the contributor's EB type noted. Categories include: CLOTHINGSHOESSOCKSUNDERGARMENTSMISCELLANEOUSBecause a suggestion may not pertain to every individual, and there is no one product that works for everyone, dis

Our #EverydayEB P2P Tips series is a community-driven resource that aims to empower and support individuals living with EB in their daily lives. In this series, EB Community members share their practical tips, tools, and strategies to help others navigate life with EB. We kick off the series with a focus on EB-friendly Clothing and Fashion! In this post, Katherine Bartos, a law student from Austin

Our #EverydayEB P2P Tips series is a community-driven resource that aims to empower and support individuals living with EB in their daily lives. In this series, EB Community members share their practical tips, tools, and strategies to help others navigate life with EB. We kick off the series with a focus on EB-friendly Clothing and Fashion! In this post, Shelbi Keesler, a remarkable individual who

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories.  Today’s spotlight shines on Martine Svaeren, a peer leader for DEBRA Norway who lives with EB Simplex. 1. When were you diagnosed with EB Simplex? Please tell us about you and you

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories.  Today’s spotlight shines on Shirvani Naran, a Mrs Globe South Africa finalist living with Dystrophic EB. 1. When were you diagnosed with EB? Please tell us about you and your fami

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories.  Today’s spotlight shines on Winnie Bruce, a professional portrait photographer from Maryland living with Junctional EB.  1. When were you diagnosed with EB? Please tell us about y

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories.  Today’s spotlight shines on Savanah Zech, a Business Analyst for UW Medicine from Washington State. She lives with Epidermolysis Bullosa Simplex. 1. When were you diagnosed with E

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories.  Today’s spotlight shines on Meera Shukla, a Generation Resource Planner with a PhD in Electrical Engineering. She lives with Dominant Dystrophic EB (DDEB) and resides in Indiana,

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories.  Today’s spotlight shines on Mehmet Kacmaz, a 25-year-old travel enthusiast and EB advocate who lives with Dystrophic EB. He resides in a small village within Diyarbakir, Turkey. 1

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect spotlight series highlights their unique stories.  Today’s spotlight shines on Jane Scherlag, a 62-year-old woman from New York who lives with EB Simplex with Muscular Dystrophy (EBS-MD), an extremely rare diagnosis. Read on as Jane takes us through he

Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories. Today’s spotlight shines on Annie Keys Kendrick, a Project Specialist for Greensboro AHEC from North Carolina who lives with EB Simplex. She is also mom to Brooks, an 18-month-old

A Note to the EB Community: Our Clear PurposeBy Krish Krishnan, Chief Executive Officer and Suma Krishnan, Chief Operating OfficerDear members of the EB Community, As Rare Disease Day approaches, we are thrilled to introduce you to Krystal Biotech. People living with rare diseases are at the center of everything we do -- Krystal has an important mission of making a meaningful difference in the liv