Our one-of-a-kind EB Connect community is made up of individuals and families from around the world who are navigating life with EB. The EB Connect Spotlight series highlights these individuals and their unique stories. Today’s spotlight shines on Jeremiah Marshall, a gamer from California who lives with RDEB.

1. When was your child diagnosed with EB? Please tell us about your family’s journey learning about the diagnosis. 
I was diagnosed at birth. They only knew I had EB because another boy was born 2 days before me in the same Hospital.  

2. What are your favorite hobbies/interests? Does your EB present any challenges in these? If so, how have you managed it?
I spend all of my time on the computer playing video games, Googling the world and talking to friends. I can't really go out to meet people as much as I'd like, so I'm always trying to find ways to put myself out there to meet anyone and everyone.  

3. Please share with us your dreams and aspirations –both short and long-term.
Growing up with video games a lot in my life, I always loved to hear the voice lines of different characters. I've always been told I have a strange voice and should give voice acting a try. With all of the travel for auditions it was something I never really figured out how to break into; maybe one day.  


Thank you, Jeremiah, for sharing your story! You can connect with Jeremiah by sending him a message

If you would like to contribute to the EB Connect Spotlight series, please send a private message to Aigerim!

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